illness   3254

« earlier    

How to Support People with Invisible Illnesses - NWPC
CHALLENGES OF LIVING WITH AN INVISIBLE ILLNESS

In addition to the various symptoms of a chronic and invisible illness, people suffering from these illnesses can also experience frustration, guilt, exhaustion and embarrassment.

For those diagnosed with an illness at a young age, the common stereotype that younger populations are supposed to be healthy makes it especially difficult. For those diagnosed later in life, many feel guilty they are unable to more actively participate in the lives of their families and be active with their children and grandchildren.

Invisible illnesses impact people in all aspects of their lives, personally and professionally. They can severely impact ability to routinely work and may lead to social isolation and depression.
invisibility  illness  disability-culture  disability-rights  impairment  cfs/me  fibro  multiple-sclerosis  arthritis 
yesterday by jesse_the_k
You're the One That I Want by PR Zed (przed)
"You don't have to worry about not having good health insurance," Bucky says. "I'll pay. Whatever your treatments cost, I'll pay it." He'd pay anything to save Steve.

"I can't let you do that," Steve says. "I can't let you drain your savings when we both know I'm going to die eventually anyway."

"Don't say that," Bucky says. This is a problem. He can solve problems. He solves problems at work all day. That's what he does.

And then it comes to him. The wonderful, horrible solution to this catastrophe.

"Let's get married," Bucky blurts out.

When Steve's heart starts failing, Bucky's gold standard Stark Industries health insurance gets Steve the treatment he needs. But Bucky finds that when you're secretly in love with your (maybe dying) best friend, things get a lot complicated, fast.
avengers_au  steverogers/buckybarnes  przed  h/c  angst  illness  wordcount:50.000-74.999  to_read 
16 days ago by tittakv
Castaway
"The Devil is real. A sentence Chloe Decker never believed until Lucifer Morningstar burned out her skepticism with his hellfire eyes. It's a "Hell" of a reality shift, but Chloe realizes she may not have time for gradual acceptance when she discovers that one of the bodies in her most recent murder investigation isn't human. Worse still, the next target might be Lucifer. A story that begs the question: who prays for Satan?" (131,014 words)
lucifer_morningstar  chloe_decker  mazikeen  lucifer/chloe  bamf!lucifer  protective!lucifer  kidnapped!lucifer  hurt!lucifer  tortured!lucifer  sick!lucifer  protective!chloe  kidnapped!chloe  hurt!chloe  understanding!chloe  friendship  casefic  character_study  devil!reveal  kidnapping  torture  hunger/starvation  illness  escape/rescue  slowburn  first_time  lucifer:postseries  fandom:lucifer  author:ariaadagio  have:pdf 
17 days ago by elwarre
happygiraffe - Always Gold
"Someday he's planning to visit every star in the galaxy." Obi-Wan stated this childish goal as if it were completely reasonable. "But I only want to show him a few, while I still can."

Obi-Wan is trying to secure his padawan's future, since the healers tell him he won't be around to witness it. Anakin's just trying keep from falling apart.
starwars  happygiraffe  gen  era:prequels  au:canon  angst  h/c  illness  grief  ohmyheart  wc:10-20k 
4 weeks ago by goodgriefcharlie
🅃🄸🄼 on Twitter: "1/ I grew up in the service industry. Great products and great service are the same."
1/ I grew up in the service industry. Great products and great service are the same.

2/ Know your audience: there’s a difference between a Michelin Star restaurant and greasy spoon. You would rightfully be annoyed if someone came and folded your napkin between slices of pizza. You build a restaurant for your customers, not for yourself.

3/ You learn how to listen to customers. If you ask “How is everything?” no one ever says things were terrible—and if they do they are probably taking out something else in their lives on you. *How* they said “everything is fine” is what matters.

4/ If a restaurant has perfect food, perfect service, perfect decor—it becomes perfectly forgettable. People expect to pay for an experience not just with their wallets but with their own effort. The lines, the waits make everything worth it. Effortless=forgettable.

5/ Don’t talk shop in front of house. Customers don’t care that a server missed their shift or that the cook is in a bad mood today. Customers literally don’t want to know how the sausage is made—they just want to eat it.

6/ Finally, churn matters. There’s only so many people who will try you once, let alone come back. If no one comes back, you’re done.

[See also: "The Internet Needs More Friction: Tech companies’ obsession with moving data across the internet as fast as possible has made it less safe."
https://motherboard.vice.com/en_us/article/3k9q33/the-internet-needs-more-friction ]

[See also:
https://twitter.com/hypervisible/status/1073649771905204224

Stifling your cough so "smart" devices don't report that you are sickly and thus unemployable is now part of the nightmarish (near) future. https://cacm.acm.org/news/233329-smarter-voice-assistants-recognize-your-favorite-brandsand-health/fulltext

[image with starred part highlighted: "Yet the new sound detection capabilities also offer the potential for controversy, as the speakers now collect low-level health data. Snoring and yawning a lot, for instance, could be signs of obstructive sleep apnea, so leaked data might impact somebody's health insurance, or even car insurance rates. **A lot of coughing and sneezing might impact employability, too, if somebody seems too sickly too often.**"]

"[Smart speaker] users express few privacy concerns, but their rationalizations indicate an incomplete understanding of privacy risks, a complicated trust relationship with speaker companies, and a reliance on the socio-technical context in which smart speakers reside."

Here's the link to that study on smart speakers if you want it: https://dl.acm.org/citation.cfm?id=3274371

TFW you realize that Black Mirror is actually too optimistic.

[image with starred part highlighted: "Mitchell says **Audio Analytic is pursuing a number of avenues for its technology, such as designing drink cans so that when opened, they make different, distinctive kinds of sounds that precisely identify the drink "and so rive some kind of interaction."** However, the drink does not have to be identified; simply knowing you're drinking from a can could be valuable, says Mitchell, and might spark a verbal request from the smart speaker to recycle the can when you're finished."]

Tech bros' obsession w/ eliminating "friction" is really just trying to eliminate the messiness of dealing with humans w/ the messiness of interacting with machines, which they can better monetize. Opening a can will initiate an interaction? FFS. 🤦🏿‍♂️"]
friction  technology  surveillance  timfrietas  effort  memory  experience  2018  educationmetaphors  education  seamlessness  effortlessness  forgettability  blackmirror  chrisgilliard  insurance  service  restaurants  smartdevices  internetofthings  internetofshit  health  healthinsurance  employment  illness  audioanalytic  privacy 
8 weeks ago by robertogreco
Transmutation by Ellywinkle (NC-17)
Exposure to a Pegasus virus while battling the plague causes the virus to mutate in Tony DiNozzo. Now a new flu is on the rise. It seems mild enough, but in a few people, a very special few, ancient abilities from ancestors past have reawakended as their DNA undergoes transmutation.
Tony DiNozzo/Steve McGarrett, McKay/Sheppard (74,485 words)

Author page, check here for completed fic after taken down on roughtrade: https://ellywinkle.wordpress.com/
fanfiction  fandom:NCIS  fandom:SG1  fandom:SGA  fandom:Hawaii_Five-O  crossover  drama  illness  superpowers  rating:nc-17  author:Ellywinkle  colony!Atlantis  secession  wc:070001-080000 
november 2018 by jenna_marianne
Google model identifies restaurants that could give you food poisoning
Model detected 52% of unsafe restaurants, while random inspections detected 23%.

" machine-learned model in Chicago and Las Vegas to identify user search queries such as "stomach cramps" or "diarrhea", and then cross-referenced them with saved location history data -- in particular recently-visited food establishments -- from the smartphones used to make those searches"
Google  predict  food  disease  illness  infection  restaurant 
november 2018 by dandv

« earlier