jm + pxe   1

Science didn't understand my kids' rare disease until I decided to study it - YouTube
via Kevin Lyda: 'Sharon Terry essentially invented and promoted something akin to the GPL but for medical research. Here's a bunch of data and research and you can use it if you contribute back what you discover to everyone else.'
sharon-terry  videos  ted-talks  genetic-alliance  genes  pxe-international  pxe  tedmed  citizen-science  licensing  gpl  gnu 
13 days ago by jm

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