jm + genomes   2

Opinion: Why has the State invested €70m in a private company to look at our genetic data?
In the UK, the publicly-funded 100,000 Genomes Project is attempting to sequence 100,000 genomes from 85,000 NHS patients. It is a private company, owned by the Department of Health and Social Care, that partners with industry and has transparent policies in place on ethics, access to the genetic data and engagement with patients and the public.

Ireland too has decided to invest in genomic medicine. Rather than ensure that this investment is in a manner that best serves the Irish public, €73.5 million was given to Genomic Medicine Ireland (GMI), a company owned by the Chinese pharmaceutical company WuXi with zero public ownership, to sequence the genomes of 400,000 Irish people. This investment has serious legal and ethical concerns that are likely to negatively impact genomic research in Ireland.
ireland  genomics  genomes  medicine  health  future  china  wuxi  gmi 
6 weeks ago by jm
Crumlin hospital sent DNA off without consent
a company called WuXi NextCODE owning the genome data for a large part of Ireland's population is very cyberpunk
wuxi-nextcode  genomics  genomes  data-privacy  privacy  crumlin-hospital  genes  ireland  gdpr 
january 2019 by jm

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