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When data gets creepy: the secrets we don’t realise we’re giving away | Technology | The Guardian
Very good article around the privacy implications of derived and inferred aggregate metadata from Ben Goldacre.
We are entering an age – which we should welcome with open arms – when patients will finally have access to their own full medical records online. So suddenly we have a new problem. One day, you log in to your medical records, and there’s a new entry on your file: “Likely to die in the next year.” We spend a lot of time teaching medical students to be skilful around breaking bad news. A box ticked on your medical records is not empathic communication. Would we hide the box? Is that ethical? Or are “derived variables” such as these, on a medical record, something doctors should share like anything else?
advertising  ethics  privacy  security  law  data  aggregation  metadata  ben-goldacre 
december 2014 by jm
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