jesse_the_k + disablism   55

Autistic Hoya: How "Differently Abled" Marginalizes Disabled People
When I say that I am "disabled," I am not putting myself down, insulting myself, suggesting that something is wrong with me, or making a negative statement about myself. I am staking a claim in an identity that is important to who I am as a person. I am recognizing that my mind/body function atypically, and that because of this, I am constantly forced by mainstream social/cultural attitudes and the laws and policies that enforce them to choose between being othered (and then discriminated against or outright harmed) or accepting the idea that I must hide who I am by passing as an abled person.

By calling myself disabled, I am rejecting the idea that it is wrong to have a mind/body like mine.
metaphor  language  disablism  disability-culture  autistichoya 
21 days ago by jesse_the_k
4 Disability Euphemisms That Need to Bite the Dust – Center for Disability Rights
Emily Ladau

One of the biggest disparities surrounding disability is the language people use to refer to it. I prefer to be a straight shooter and keep things simple by using the term “disabled person.” Other people choose alternative euphemisms to avoid saying that. While I know some people genuinely embrace words other than “disabled” – even some people who actually have disabilities – I just can’t get on board with that.

Of course, I can’t presume to speak for anyone other than myself, and everyone should have the right to choose how to refer to themselves so long as they don’t impose it upon anyone else. However, when non-disabled people try to dance around the word “disabled” in an effort to be more respectful, I don’t think they realize the hidden ableism behind the euphemisms. It demonstrates an assumption that “disabled” is a negative quality or derogatory word, when in fact, disabled is what I am. It is, in my opinion, the plainest, simplest, most straightforward, and least offensive way to refer to what my body can and cannot do.

So, next time you hesitate to say “disabled,” consider why I wish these four alternate terms would kick the bucket:
metaphor  language  disablism  disability-culture 
21 days ago by jesse_the_k
Euphemisms for Disability are Infantalizing | crippledscholar
I have written about the importance of language as it relates to disability before. To oppose the idea that clear language should be avoided in favour of what can best be described as pretending difference doesn’t exist to opposing the replacement of clear language with euphemisms.

Euphemisms are rampant in disability discourse. There is this misguided idea that disability must be softened and made palatable.

This comes from general assumptions that the word disabled is negative and shouldn’t be used to describe people and from watching words that relate to disability be adopted by society as insults
metaphor  language  disablism  disability-culture  disability-studies 
21 days ago by jesse_the_k
Why We Need to Stop Comparing Mental Illness to Physical Illness
The conversation looks something like this: “Why can’t we treat mental illnesses the way we treat physical ones? You wouldn’t tell someone with a broken leg not to take pain medications or tell someone with bronchitis that they’re faking their illness.”

I get it.

As someone who has PTSD, which is largely invisible and commonly misunderstood, I often feel like my mental health isn’t taken seriously and is uniquely stigmatized.

But the difference here mainly lies in the fact that when we’re talking about physical illnesses, we’re making the assumption that folks with physical illnesses don’t face ableism or stigma the way that folks with mental illnesses do.

And that’s not accurate.

When we’re comparing short-term, treatable conditions, like a broken limb, to chronic mental health issues, we’re using the wrong comparison.

Folks don’t react to a short-term illness with ableism because it’s assumed that the condition is going to be easy to treat and will go away soon.
disablism  disability-culture  disability-pride  ableism  mentalhealth  metaphor 
july 2019 by jesse_the_k
Bed, Body & Beyond: Languaging Disability: Where Do "Ability" and "Dis/Ability" Fit In?
Most people said "ability." I strongly disagree with this, even though it seems to be most people's default. For instance, I googled "race socioeconomic gender sex ability" and got lots of hits for "diversity" policies or studies, or antidiscrimination policies. Here are some examples:
These include but are not limited to age, ethnicity, socioeconomic status, gender, physical and cognitive abilities/qualities, race, sexual orientation, gender ...
These can be along the dimensions of race, ethnicity, gender, sexual orientation, socio-economic status, age, physical abilities, religious beliefs, political beliefs, ...
in terms of race, ethnicity, culture, socioeconomic status, gender, sexual orientation, abilities, ...  
I don't think there's been enough thought or discussion about this, both inside and outside the disability community. It seems like people are using what's handy or conventional, without much actual familiarity with disability or what it means to classify disability status under "ability."
metaphor  language  disablism  disability-culture  disability-studies  abled  TAB  nondisabled 
may 2019 by jesse_the_k
Catapult | Catapult | When People See Your Blindness as Superhuman, They Stop Seeing You as Human | M. Leona Godin
So I felt vindicated, excited, and inspired when I read the perceptual psychologist Lawrence Rosenblum’s See What I’m Saying, in which we find the seemingly fantastic feats of the super blind alongside related abilities of the general population, though to a lesser extent, due mainly to lack of incentive and practice. A blind person has more reason to exploit her human echolocation skills than a sighted person, but that does not mean these skills are superpowers. As Rosenblum demonstrates, what we often take as superpowers are really just expansions of what humans do unconsciously all the time: “Our less-conscious brains are absorbing a profusion of sights, sounds, and smells using processes that seem superhuman. While psychologists have long known that our sensory systems can take in information without our awareness, new research is showing that entire perceptual skills are occurring this way. These implicit perceptual abilities are allowing our less-conscious brains to have all the fun.”

I find the idea that all of us have unconscious faculties ready to be exploited very comforting. It challenges the stereotype of the super blind by suggesting that, if given the chance, we can all develop extraordinary powers. This is particularly important for blind people, who are often confronted with outlandish expectations.
blindness  supercrip  daredevil  writing  echolocation  firstperson  disablism  mobility 
december 2018 by jesse_the_k
lightgetsin | Data
I was recently treated to another round of “disabled people need to just ask for accommodations, then they’d be given them,” with the usual accompaniments of “you shouldn’t be so angry” and “you should be nicer."

So I figured, okay. I know this is bullshit from a lifetime of experience, but let’s gather some data.

What I did
I gave myself 7 days. Every time during that 7 days I ran into a particular kind of inaccessibility, I wrote to the owner/relevant authority and asked them to fix it. I aimed for short, factual, informative request letters.
ACCESS  accommodations  advocacy  activism  blind  disablism  disability-rights  webdesign 
april 2018 by jesse_the_k
Being a doctor | Lyssa and Me
One of the most unexpected things about diagnosis is the loss of the right to define yourself.

Just as you are presented with the word that brings all the disparate parts together, that explains both the things that are incomprehensibly difficult and those that are impossibly easy, everyone and their dog suddenly has an opinion on how autistic you are (or aren’t).

I’m guessing if you are male, a computer geek, an engineer or anyone whose adult life has in large part encompassed the hard sciences or the underpinning knowledge industry, the tendency is more towards ‘spot the autistic trait’ and enthusiastic searching for other (generally male) relatives back through several generations who can now be included in the autistic family.

If you have none of the above traits, the response is likely to be a little more… mixed.
autistic-spectrum  women  doctor  disablism  accommodations  frustration  blog 
march 2018 by jesse_the_k
Not a "Good Guy" - Anil Dash
It really does feel wonderful to have someone you've never met take the time to say that I model "a lot of positive ally behaviors"! I am thankful for the great many kindnesses I encounter in trying to help out. But I want to make clear to the people I'm lucky enough to connect to that I didn't, and still don't, have any idea what the hell I'm doing. I'm not (yet!) good at it. It's just that the work of fixing this industry, of making it as good as we all deserve, is such an enormous project that we've got room for those of us who screw it up and stumble around and sometimes, despite that, make progress.

The next time you hear someone is "one of the good ones", be skeptical. Don't believe it. Because the truth is, we're all that good. Especially when we help each other get better.
geekfeminism  activism  anildash  politics  tech  racism  disablism  classism 
october 2017 by jesse_the_k
"You Do Not Exist To Be Used": Dismantling Ideas of Productivity in Life Purpose
This is because the disabled body introduces an appearance of uncontainability: a body out of control. Without accommodations or adaptations, the distinctive divide between able-bodied and disabled takes place, the primary difference being in usefulness or its ability to be used in the context of normative means, or without accommodations and adaptations.
distheory  disability  non-working  unemployment  disability-culture  disablism  working  disability-rights  capitalism  productivity 
march 2017 by jesse_the_k
Of Battered Aspect: Words. Tone. Death
Have you been left all alone?" Her tone was suitable for a dog who's been tethered up outside a store, a dog looking eagerly at the door for the return of its master. Her tone was suitable for a small baby, sitting in the childseat of a grocery cart as its mother is picking up milk a few feet away. Her tone was entirely unsuitable for my situation. Waiting for the car to be pulled around before pushing out into the wind, the cold and the ice.
internalized*ism  disablism  dave-h  physical  intellectual-disability  public-interactions 
august 2016 by jesse_the_k
The 'Miraculous Cure' Trope Is Not The Disability Representation We Need - The Establishment
This frustration was echoed when I spoke with RC, who identifies as developmentally disabled, chronically ill, and mentally ill. “The trope just denies us representation point blank. It takes disability and turns it into an affliction like the common cold or something similar that just can get passed by eventually. So we don’t get heroes, we get people who are sort of like us but then decide to go ‘beyond’ us.” Then RC went on to say something so important: “You’re both about us and without us, so you’re not really for us.”
disablism  representation  about-us-without-us  metaphor  media 
august 2016 by jesse_the_k
Lose the Language Now Deborah
You can say that x is bad just by saying, "X is bad." But another way to say it is to compare x to something (which is also perceived is bad). So, "X is lame" carries that same connotation i.e that "X is bad." The two statements are equivalent. And from there, it's just a short step to: "Lame is bad. You are lame. You are bad bad bad."
language  disability  metaphor  disability-culture  disablism  #BADD 
june 2016 by jesse_the_k
Planet of the Bind: Salad Oil of the Academy
One way to think about academic conclaves, whether it’s the Associated Writing Programs gala or the Notarized Academy of Philosophes is that there’s an overwhelming tendency among the organizers and participants to imagine the mind as being sweetly disengaged from embodiment, hence de-politicized even as words like race or gender or sexual orientation are employed as markers of subjectivity.
access  cons  embodiment  bodies  disablism  accommodations  ADA  ud  accessibility 
may 2016 by jesse_the_k
A Stepletter
I once wrote that we 'point out the obvious to the oblivious'
disablism  access  wheelchair  dave-h  advocacy 
april 2016 by jesse_the_k
AT Discussion via Future Tense
As Wolbring defines it in Fixed, “Ableism is our obsession with certain abilities and the accompanying negative treatment of people who don’t have these kinds of abilities.”
ableism  disablism  metaphor  defining  normate-tech  assistivetechnology 
april 2016 by jesse_the_k
Ableism Disablism Finding the Right Word Jillian Weise
“I’ll Pick You Up By Your Back Brace and Throw You Like a Suitcase”: On Naming Discrimination Against Disability
jillianweise  ableism  disablism  metaphor  meta  racism  sexism  metalinguistic 
april 2016 by jesse_the_k
rollingaroundinmyhed_feed | Space Invaders version WCU
Posted by Dave Hingsburger description: A space invader from the old video game sitting in a wheelchair drawn in for
daveh  disablism  help-object 
april 2016 by jesse_the_k
Flat Out: Creating A Disabled Fictional Character
#WeNeedDiverseBooks is a hashtag that sprang to prominence a couple of months ago after a bunch of authors noticed the flagship author panel for a major book industry conference was rather
sff  disabled  writing  disablism  ya  disability-culture  davidg  disabilityart 
march 2016 by jesse_the_k
rollingaroundinmyhed_feed | The Dark Heart of Kindness
Posted by Dave Hingsburger description: A fat person in a wheelchair with a big red bag of perpetual gratitude on the
door  disablism  dave-h  help-object 
march 2016 by jesse_the_k
A Battered Aspect: 'As They See People'
Barriers are messages aren't they? They are concrete ways of messaging lack of welcome. Welcome or not, space or not, I intend to keep going into room and making space, taking up space, and using that space as an equal. Because, dammit, I'm people too.
disablism  access  planning  barrierremoval  cons 
march 2016 by jesse_the_k
"How You See Me" Who Cares
Oh, God, read the comments all over the web on this.

"I see you as a person just like me," gushes one comment from, predictably, a non disabled person. That statement galls me. It's supposed to be this wonderful gift ... and maybe it is, but only to the speaker. The speaker is affirming that they are a wondrous kind of person who has a unique and rare ability to see humanity in another person. Like being able to see that a person is a person makes someone exceptional! Like being able to see that a human being is a human being isn't to be expected in a civil society, instead it's a cherished rarity. It isn't exceptional to recognize that my neighbour is my neighbour, is it? Apparently when my neighbour has a difference or a disability it makes me, with the assumption of my own superiority, able to grant neighbour status. Forgive me, but, fuck that.
disablism  disability-culture  pityobject  downsyndrome  youtube  help-object 
march 2016 by jesse_the_k
woman on the bus
Damn, I await the day when the entrance of disability into a story doesn't change it from a story into a parable. I await the day when the existence of a person with a disability in a story doesn't make it always have a moral. I await the day when people with disabilities can be in a story without it saying a single, damn, thing about the story teller.
disablism  inspiration-porn  communication  daveh 
march 2016 by jesse_the_k
Designing Robots to look Like Humans Because Inaccessible Environment
You know, over the last 52 years, I've often thought: "They don't see me as a human being." But when I express that thought, I'm told some version of "Don't be silly! Of course we do!" (gaslighting). Encountering things like this is like being the fly on the wall -- hearing what the elite decision-makers say to each other when they don't know I'm there, and confirms what I've suspected all along.
disablism  disability-culture  technology  robot  social-construction  assistivetechnology 
march 2016 by jesse_the_k
Race: see the disability not just the person
She saw and needed me - disability, chair and all else that came with it.

I am a disabled man. And I can race children to trees with the best of them. All of me, all of me, all of me. That what I want, people to see all of me. My disability, my chair, my me ... all of it together, because that's the package.
disablism  disability-culture  wheelchair  children 
march 2016 by jesse_the_k
Ableism Is
extensive list of examples from blogger KDUB155
disability-rights  disability-culture  disablism  distheory  blog 
december 2015 by jesse_the_k
Inspiration vs Inspiration Porn
People with disabilities doing everyday activities should not be inspiring. And then there’s the little girl in the yellow dress. She’s definitely cute, there’s no arguing that. Nondisabled people see this and think, “She’s still smiling and she has no legs. If I had no legs, I’d wish to be dead, or at least stay in my house for the rest of my miserable life. She’s so inspiring!” In actuality, she’s just being a happy little girl. And the quote. As Stella Young pointed out, the cliche “The only disability in life is a bad attitude” is such bologna. To paraphrase her, smiling at stairs never made a ramp appear. This image appropriates the girl’s personality and experiences solely to make us pity her and feel better about ourselves.
inspiration-porn  blog  disablism 
november 2015 by jesse_the_k
Can't help you board" Air Canada leave disabled man at gateThe News
Jerremy Lorch is filing charges against Air Canada for violating the Air Carrier Access Act after airline staff said they could not help the wheelchair user board his flight on the ground of his…
disablism  airports  disability  Travel  access 
october 2015 by jesse_the_k
Hings burger in unwanted help
I came round the corner, and sure enough, there was a man with a disability with a bag of three bags of milk in his hands and a store basket on his lap. He looked over at me, I looked at him, he said, "Hi, how are you?" like we were old friends. I greeted him back. At that the other person said, "Well, if you are sure you're OK, I'll leave you to talk to your friend," then quickly left.
disablism  dave-h  help-object 
october 2015 by jesse_the_k
Antics of the Dangerously Sane
Jerrod Poore goes wild on the ableist asses of all the folks linking terrorist shooters to mental illness. With statistics
statistics  disablism  mental  crazymeds 
july 2015 by jesse_the_k
Cripface is still cripface with nonevident disabilities
s.e. does a great job on why cripface sucks, why it matters even with nonevident das
disablism  cripface  acting 
april 2015 by jesse_the_k
What’s Your Excuse (For Perpetuating Fitspo’s Ableist Narrative)? Kaila Prins
Author’s Note: I am writing this article as someone who straddles the line between able and disabled. I can walk, run, and jump – but not without pain. I suffer from chronic nerve pain and limited ankle mobility after an exercise-induced injury, and I don’t intend to speak for an entire group and spectrum of abilities or lack thereof; this is rather meant to be seen from the perspective of someone who fully believed that ability was the “only way” for a “valuable” body to exist in the world, who now understands what fitspiration looks like from the perspective of disability. I look forward to those of you on both sides of the spectrum (and everywhere in between) to help me continue this conversation in a healthy and productive manner.
disablism  inspiration-porn  fitspo  athletics  injury  impairment  disordered-living 
april 2015 by jesse_the_k
Invisible illness - 'I'm fed up of having to perform my disability'
The media stereotype of disabled people tends to fall in two camps, 'worthy cripples' or 'benefit scroungers', argues MN blogger Lucy Britton - here, she explores how societal expectations around disability affect her own behaviour
disability-masquerade  performing-disability  disablism  parttime-wheelchair  visible-impairment  invisibility  judging  microaggression 
january 2015 by jesse_the_k
rollingaroundinmyhed_feed | I Need a Wee Rant
Everyone piles up to wait while Dave drives through -- ignoring the other door!
help  object  rants  disablism  daveh 
december 2014 by jesse_the_k
rollingaroundinmyhed_feed | Spitting on Spite
'She doesn't let cerebral palsy get in the way of living her life.'
disablism  rhetoric  journalism 
october 2014 by jesse_the_k
What We Miss
What able-bodied privilege feels like; not the pain of impairment but the injustice of exclusion.
disablism  disability-rights  distheory  invisibility  privilege 
january 2014 by jesse_the_k
Justifying Your Deviance Capt Awkward
I assume that you have already discussed your eyepatch with the people at your work, but if you haven’t, you may want to start with “I will be using this medical aid for the foreseeable future” and stating that it has attracted notice from the customers. Then ask how your manager intends to help you deal with that.

”Manager, my eye patch is attracting some attention, sometimes negative, from customers. Since it’s staying and so am I, how would you like me to handle that?”
“O Dark Overlord Morgazor, is there a policy for handling customers who attempt to remove a medical aid?”
“Captain Hook, may I ask you or a colleague to step in and deal with customers who become aggressive about my medical aid?”
“Do we have a policy that states that rudeness or abuse towards customers will not be tolerated? Can we get one? Can we enforce it?”
“Do we have a customer-service script for customers who are behaving rudely or aggressively?” (Note that some jobs actually do.) “Can we make one together?”
eyepatch  pithy  snark  disablism  blindness  visible-disability 
january 2014 by jesse_the_k
capriuni | B.A.D.D. Post: Overcoming Prejudice Through Changing the Narrative
The first is the bias that discredits our ability for personal autonomy. That's why I want the disabled characters in my fiction to want something for themselves – it doesn't even need to be a big, powerful, plot-driving thing: even showing someone in the background of the crowd scene buying a newspaper, or flying a kite, would satisfy me.
disablism  disability-rights  story  frame 
november 2013 by jesse_the_k

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