csrollyson + 18sbx   128

CAR-T has arrived in the clinic | MPNforum Magazine
Oncologist's post discusses ways to use CAR-T differently, i.e. the next wave
sh4  bullsi  cartcell  blog  2017  18sbx 
february 2019 by csrollyson
Dr. Sharman's CLL & Lymphoma Blog: Rituximab monotherapy in CLL
Great example of oncologist blog; in this post, he asks more patients to get involved in clinical trials for CAR-T
sh3  sh4  cartcell  bullsi  2014  18sbx 
february 2019 by csrollyson
Page 17 – Patient Empowerment Network
Infographic not specific to cancer or CAR-T but useful background on how patients approach getting treatment
q1  2017  infographic  patient  sh1  social  media  research  sh2  ws1  18sbx  survey 
february 2019 by csrollyson
Discussing Costs with Your Patient Can Reduce Financial Toxicity
Not specific to CAR-T, but interesting plea to oncologists to discuss treatment costs with patients to avoid "financial toxicity"
cancer  treatment  cost  application  story  18sbx  sh3  insurance 
february 2019 by csrollyson
Connecting Healthy Adults to People With Blood Cancers
Article about CAR-T for ALL + post on transplant patients and outcomes
18sbx  bullsi  ws1  sh4  ALL  transplant 
february 2019 by csrollyson
Papers with the keyword chimeric t cell and lymphoma (Page 2) | Read by QxMD
Website is a scraper that arranges news stories by keyword, found via SH3 search, so physician authors
bullsi  sh3  news  papers  service  website  18sbx 
february 2019 by csrollyson
Great New Six Months post CAR-T – CLL Society
Doctor-patient talks about his CAR-T experience; Upenn "product" not yescarta nor kymriah
18sbx  sh1  ws3  bullsi  bullsi2  physician  patient  2018  cartcell 
february 2019 by csrollyson
The Role of the Oncology Nurse in CAR T-Cell Therapy
Issue and examples of nurses' roles in managing CAR-T side effects; some nice detail
ws3  atc  nurse  patient  education  cartcell  18sbx  side  effect 
february 2019 by csrollyson
Too Young For Cancer? | Everyday Health
A cancer physician and patient discuss how healthcare has neglected young adults in cancer research and treatment: they aren't young old people
millennial  cancer  social  stigma  treatment  fertility  interview  physician  patient  sh1  sh3  advocacy  young  adult  18sbx 
february 2019 by csrollyson
Comprehensive Guide For Young Adults | LIVESTRONG
How and why young adults have been neglected in cancer clinical trials and treatments;
18sbx  sh1  young  adult  student  fertility  side  effect  COC  insurance  social  stigma  awareness 
february 2019 by csrollyson
MY CANCER JOURNEY - arlenecotter.com
Must-see very unusual emotional account of NHL treatment cancer journey
sh1  ws2  ws3  NHL  journey  surprise  exceptional  bullsi  death  family  friend  transplant  allogenic  2ndline  18sbx 
february 2019 by csrollyson
Finding Freedom: My Cancer Journey and my PICC - Care+Wear
Great specific story about patient's PICC line during multiple rounds of chemo
NHL  sh1  chemotherapy  PICC  yoga  18sbx 
february 2019 by csrollyson
I Miss Cancer
Out of our orbit, but a different take on having cancer
sh1  emotion  treatment  18sbx  chemotherapy  family  reflection 
february 2019 by csrollyson
My Lymphoma-Free Victory Party: How to Plan Your Own
After cancer treatment: Fun post about celebrating successful lymphoma treatment
cancer  party  18sbx  sh1  lymphoma  ws3 
february 2019 by csrollyson
Lymphoma Has Inspired Me to Embrace a Better, New Normal
After cancer treatment: Radiant Rachel on how gratitude and mindfulness due to her lymphoma have changed her life for the better
sh1  18sbx  advocacy  ws3 
february 2019 by csrollyson
Three Months with Cancer: Love, Ideas and Vulnerability
Very frank, vulnerable account of his emotions during NHL treatment, and the role of mission in his recovery [no CAR-T though]
sh1  nhl  love  relationship  advocacy  suicide  highschool  mission  church  politics  exceptional  bullsi  18sbx 
february 2019 by csrollyson
The Chemo Years | My cancer journey
Exceptional humor, humanity and detail about her cancer journey (no CAR-T)
sh1  blog  bullsi  exceptional  brother  family  allogenic  transplant  advocacy  18sbx 
february 2019 by csrollyson
From “Incurable Cancer” to “Cancer Free” - How CAR T-Cell Immunotherapy Saved This 52-year old Lymphoma Patient
Interesting: seems like details are missing as post dated 2018 and it calls NHL "incurable" and "terminal" (misinformed CHP?)
sh4  sh1  example  cartcell  18sbx  2018  wisconsin 
february 2019 by csrollyson
Paying for CAR-T Treatment - The Myeloma Crowd
Useful detail that describes delays in insurance reimbursement for CAR-T
cartcell  insurance  example  reimbursement  hospital  atc  sh4  bullsi  18sbx  dlbcl  medicare  medicaid  payer 
february 2019 by csrollyson
Oncology Nurse Inspires Patients, Health Care Team
Oncology nurse gets cancer, realizes she hasn't been empathic with her patients ("Now I get it")
oncology  nurse  empathy  patient  18sbx  story 
february 2019 by csrollyson
Lindsay Norris – Here Comes the Sun
Oncology nurse starts blog to chronicle her treatment [no CAR-T but professional and raw at times]
sh3  sh4  sh1  18sbx  nurse  oncology  family  ATC 
february 2019 by csrollyson
Doctor Priorities vs. Patient Priorities
Interesting point: It's not unusual for cancer patients to priorities life events over treating their disease
sh3  sh4  sh1  conflict  lifestyle  cancer  example  disease  priority  treatment  ethics  communication  relationship  18sbx  bullsi 
february 2019 by csrollyson
What Patients Say, What Doctors Hear. Doctor-patient Communication
Physician shares experiences and statistics of patient–physician communication
medicine  sh1  sh3  18sbx  communication  Statistics  example  social  memory  physician  patient  EMR  history 
february 2019 by csrollyson
The One Thing That Patients Need The Most – Ruth Henderson – Medium
Superb caregiver account with *both parents* one w NHL + eye-popping examples of care lapses
sh1  sh2  advocacy  18sbx  nhl  canada  example  story  dementia  family  bullsi  patient  caregiver 
february 2019 by csrollyson
FAQs — MY CANCER ADVOCATE
Another avenue for studying care hand-offs [continuity of care]
cancer  patient  sh1  sh2  advocate  faq  18sbx  ws2  ws3  handoff  COC 
february 2019 by csrollyson
My Two-Decade Journey with Cancer Immunotherapy
Different, specific, and long: very informed Lymphoma survivor champions immunotherapy, including CAR-T, reviews its progress
sh1  bullsi  cartcell  advocate  18sbx  immunotherapy  history  treatment  ws3  bullsi2 
february 2019 by csrollyson
The Patient Is Ready, But the Insurance Is Not
Superb: oncology fellow surveys his colleagues about their frustration with ponderous payer admin procedures [note twitter response]
sh3  sh4  bullsi  payer  insurance  administration  treatment  barrier  q1  2019  twitter  18sbx  oncology 
february 2019 by csrollyson
DLBCL is back - Lymphoma.com - Lymphoma Support and Help Forums!
Excellent discussion to support caregiver in first ATC visit for just-transformed DLBCL that needs third-line treatment, CAR-T mentioned
forum  sh2  caregiver  bullsi  DLBCL  atc  sh1  18sbx  bullsi2 
february 2019 by csrollyson
How and Why I Plan to Celebrate My Lymphoma Diagnosis Anniversary
FL patient celebrates his [cure]; very human and funny, links to more; doesn't mention CAR-T, but bullsi for humor & humanity ;^)
sh1  ws3  follicular  2019  q1  family  caregiver  children  celebration  bullsi  18sbx 
february 2019 by csrollyson
Corbella: Boy’s life at risk simply because he lives in Alberta | Calgary Herald
Political fight to have CAR-T for boy in Alberta, which doesn't pay for care in other provinces (CAR-T trial in Toronto)
cartcell  canada  alberta  province  healthcare  insurance  clinical  trial  politics  q3  2018  toronto  18sbx  NHL  SH2 
february 2019 by csrollyson
My Story - Two Strong
Pregnant mother learns she has DLBCL during first trimester. In remission after first line, but nice detail about pregnancy, home life with cancer
sh1  ws1  bullsi  blog  pregnancy  dlbcl  cancer  journey  18sbx  1stline  family  infection 
february 2019 by csrollyson
About Grady Vogt : My Cancer Story
Superb NHL patient blog, so authentic, and more raw than most, plus detailed. At present he is in remission after second line
nhl  sh1  bullsi  blog  journey  1stline  2ndline  18sbx 
february 2019 by csrollyson
My Cancer Story: An Interview With My Younger Brother - Shadow's Edge
Unique post: sister (patient) interviews her younger brother about his experience as sibling during her treatment
nhl  sh1  patient  blog  story  sibling  brother  18sbx  school  family  bullsi 
february 2019 by csrollyson
Dr. Sharman's CLL & Lymphoma Blog
Example of lymphoma physician blog; he hasn't written about CAR-T lately
sh4  blog  physician  cancer  chemotherapy  18sbx 
february 2019 by csrollyson
Lympho Bob: CAR-T posts
Voluminous blog of NHL patient includes his opinions and thoughts about CAR-T; he has NOT had CAR-T, was cured in 2010-2011
sh1  blog  nhl  patient  journey  experience  bullsi  2010  18sbx 
february 2019 by csrollyson
my cancer story sophie sabbage
Yes, UK patient but she's in the psych field and sharing in unusual ways
cancer  philosophy  uk  spirituality  emotion  therapy  18sbx  culture  repression  bullsi 
february 2019 by csrollyson
What if chemo does not work, Car-t? : lymphoma
Caregiver in Europe asks about U.S. CAR-T for his father; US patients talk about their experiences
sh2  sh1  cartcell  discussion  forum  europe  18sbx  bullsi  bullsi2 
february 2019 by csrollyson
Car T cell treatment : lymphoma
Patients and caregivers talking about CAR-T side effects and "value"
sh1  sh2  bullsi  ws2  patient  caregiver  discussion  forum  18sbx  bullsi2 
february 2019 by csrollyson
CAR T for DLBCL: What to Expect
WebMD's very short simple entry on CAR-T. Useful because thousands of patients and caregivers probably start here
sh1  sh2  ws1  ws2  reference  18sbx 
january 2019 by csrollyson
Dan's Story: My Experience With CAR T-Cell Therapy | Non-Hodgkin Lymphoma | Patient Power
NHL patient and his wife interviewed on video about their whole journey, which ended with CAR-T and total remission
sh2  sh1  nhl  ws1  ws2  ws3  bullsi  video  18sbx  bullsi2 
january 2019 by csrollyson
For One Hematologist, No Disease Progressions in Follicular Lymphoma With Rituximab Maintenance - The ASCO Post
Hematologist uses alternative treatment approach to Follicular NHL cases, and has 100% success rate after 25 years
sh3  alternative  therapy  Follicular  NHL  lymphoma  rituximab  patient  results  18sbx  hematology 
january 2019 by csrollyson
Towards the better diagnosis of lymphoma
Experimental blood tests measure DLBCL "DNA leakage" into the blood to predict relapse refractory disease
lymphoma  DLBCL  DNA  waste  blood  test  research  clinic  practice  oncologist  relapse  refractory  prediction  cancer  18sbx  bullsi  sh3  sh4 
january 2019 by csrollyson
Aging with grace - DYING, SURVIVING, OR AGING WITH GRACE
Blog is a compendium of articles addressing spectrum of aging and potentially fatal disease
aging  death  survival  grace  spirituality  practical  hack  boomer  elderly  senior  disease  infirmity  legal  family  will  trust  nutrition  workout  cancer  HIV  18sbx 
january 2019 by csrollyson
Hodgkin’s Lymphoma and the Day I was Diagnosed
Yes, Hodgkins, but totally applicable to what it's like to learn you have cancer + interaction with her physician (PCP/GP)
diagnosis  hodgkin  lymphoma  emotion  physician  18sbx  ws1 
january 2019 by csrollyson
Immunotherapy has changed cancer medicine. But it's no miracle cure | Ranjana Srivastava | Opinion | The Guardian
Oncologist SH3 emphasizes negative emotional side effects of CAR-T hype, relates several SH1 patient conversations
opinion  pointofview  sh3  oncologist  australia  q3  2017  cartcell  18sbx  death  grief  family  bullsi  bullsi2 
january 2019 by csrollyson
Mike Delia: Skiing with the Grandkids Thanks to CAR T-Cell Therapy
NHL patient case study for CAR-T clinical trial; an ATC ad with little detail
NHL  video  patient  sh1  ws1  ws2  ws3  advertising  ATC  18sbx  clinical  trial  example 
january 2019 by csrollyson
CAR-T and Follicular Non-Hodgkin's Lymphoma | CAR-T news and links as we encounter them… | Page 2
Follicular NHL CAR-T Patient created this info-blog with significant detail about WS3, After CAR-T
patient  sh1  blog  cartcell  ws3  bullsi  information  resources  18sbx 
january 2019 by csrollyson
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