11775
[no title]
THIS by @Imani_Barbarin makes me think abt "How are you?". It can be a five minute answer,if we have the strength, or want to give you a proper answer.
It's also hard to do this performance routine at the end, where you reassure whoever is asking that you'll be alright somehow https://twitter.com/Imani_Barbarin/status/101934078345398
yesterday
[no title]
Sigh, like the ONE time I've asked for help in the past few weeks of being in and out of consciousness and the response was, "You see? What happened to "I'll figure it out"? referring to my optimistic catchphrase for getting stuff done...

This is why I rarely ask for help.
yesterday
[no title]
Aside from subtle & overt discrimination, one of thing I found challenging when I became disabled was learning to adjust my thinking about effort & time required & my supply of energy. Aptly called energy conservation.
yesterday
[no title]
What is energy conservation? Energy conservation refers to the way activities are done to minimize muscle fatigue, joint stress, and pain. By using your body efficiently and doing things in a sequential way, you can save your energy. Work Simplification and Energy Conservation principles will allow you to remain independent and be less frustrated by your illness when the energy you have lasts throughout the day.
yesterday
[no title]
Free full text "#MyalgicEncephalomyelitis/#ChronicFatigueSyndrome & the #biopsychosocial model: a review of patient harm & distress in the medical encounter" (June 21) Ambitious task to take this on. I thought it was done well with 140 refs (incl. books)
yesterday
[no title]
10 points made in the new @keithgeraghty review of harm and distress encounted by #MECFS patients in seeking diagnosis and treatment
yesterday
[no title]
ME/CFS specialist Susan M. Levine, MD, also said she sees MCAS frequently. "I suspect 50% to 60% of ME/CFS patients have it.
3 days ago
[no title]
Our codes include things like asking people before you touch them, asking before you take their picture, checking in on pronouns, not assuming anything about identity or orientation, addressing microaggressions, taking a firm stance about no racism, no homophobia, no xenophobia, no fatphobia, no transphobia, no body shaming – these are things that really make us not so different in terms of a community space but really different in terms of a retail environment.
3 days ago
[no title]
I've been trying a few supplements over the past few months based on the suggestions of other people with ME (or similar chronic illnesses). I take them two weeks apart from any other new supplements, then wait until I run out and see if I notice a difference. So far the biggest difference has been D-Ribose. My energy and brain fog has improved. Nothing drastic, but definitely noticeable to me 💊
thebeddays#myalgicencephalomyelitis #myalgicE #mecfs #fibromyalgia #fibro #chronicfatigue #chronicpain #chronicillnesslife #chronicillness #chroniclife #spoonie #disability #disabled #dribose
3 days ago
Writer Chidera Eggerue on what #SaggyBoobsMatter is really about
Writer Chidera Eggerue on what #SaggyBoobsMatter is really about

She started a movement with one simple question: why should only small-boobed women go braless? Now, Eggerue has written a book she calls an antidote to the self-help scene
6 days ago
[no title]
Thanks @WMicrobiomeDay and those who nominated me! We are alive during one of the most exciting times in history 👉 The microbiome helps regulate “human” metabolism, immunity, mood etc. This understanding allows chronic inflammatory disease to be studied in an entirely new light
6 days ago
[no title]
The crows of New Caledonia have a reputation for being clever, but new research indicates they may be able to pass on tool design through observation and memory.
7 days ago
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