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The CAR T-cell Chicago story: One year later – Science Life
Hospital-produced patient story of successful CAR T treatment; also discusses how ATC and community oncologist collaborated
ATC  18sbx  story  patient  comdoc  atcdoc  bullsi  ws1  ws2  ws3  sh1  sh3  sh4  uchicago  via:csrollyson  kite  gwait 
april 2019 by gwaitley
MY CANCER JOURNEY - arlenecotter.com
Must-see very unusual emotional account of NHL treatment cancer journey
sh1  ws2  ws3  NHL  journey  surprise  exceptional  bullsi  death  family  friend  transplant  allogenic  2ndline  18sbx  via:csrollyson  kite 
april 2019 by gwaitley
Dan's Story: My Experience With CAR T-Cell Therapy | Non-Hodgkin Lymphoma | Patient Power
NHL patient and his wife interviewed on video about their whole journey, which ended with CAR-T and total remission
sh2  sh1  nhl  ws1  ws2  ws3  bullsi  video  18sbx  bullsi2  via:csrollyson  kite 
april 2019 by gwaitley
My Two-Decade Journey with Cancer Immunotherapy
Different, specific, and long: very informed Lymphoma survivor champions immunotherapy, including CAR-T, reviews its progress
sh1  bullsi  cartcell  advocate  18sbx  immunotherapy  history  treatment  ws3  bullsi2  via:csrollyson  kite 
april 2019 by gwaitley
Great New Six Months post CAR-T – CLL Society
Doctor-patient talks about his CAR-T experience; Upenn "product" not yescarta nor kymriah
18sbx  sh1  ws3  bullsi  bullsi2  physician  patient  2018  cartcell 
february 2019 by csrollyson
The Role of the Oncology Nurse in CAR T-Cell Therapy
Issue and examples of nurses' roles in managing CAR-T side effects; some nice detail
ws3  atc  nurse  patient  education  cartcell  18sbx  side  effect 
february 2019 by csrollyson
MY CANCER JOURNEY - arlenecotter.com
Must-see very unusual emotional account of NHL treatment cancer journey
sh1  ws2  ws3  NHL  journey  surprise  exceptional  bullsi  death  family  friend  transplant  allogenic  2ndline  18sbx 
february 2019 by csrollyson
My Lymphoma-Free Victory Party: How to Plan Your Own
After cancer treatment: Fun post about celebrating successful lymphoma treatment
cancer  party  18sbx  sh1  lymphoma  ws3 
february 2019 by csrollyson
Lymphoma Has Inspired Me to Embrace a Better, New Normal
After cancer treatment: Radiant Rachel on how gratitude and mindfulness due to her lymphoma have changed her life for the better
sh1  18sbx  advocacy  ws3 
february 2019 by csrollyson
FAQs — MY CANCER ADVOCATE
Another avenue for studying care hand-offs [continuity of care]
cancer  patient  sh1  sh2  advocate  faq  18sbx  ws2  ws3  handoff  COC 
february 2019 by csrollyson
My Two-Decade Journey with Cancer Immunotherapy
Different, specific, and long: very informed Lymphoma survivor champions immunotherapy, including CAR-T, reviews its progress
sh1  bullsi  cartcell  advocate  18sbx  immunotherapy  history  treatment  ws3  bullsi2 
february 2019 by csrollyson
How and Why I Plan to Celebrate My Lymphoma Diagnosis Anniversary
FL patient celebrates his [cure]; very human and funny, links to more; doesn't mention CAR-T, but bullsi for humor & humanity ;^)
sh1  ws3  follicular  2019  q1  family  caregiver  children  celebration  bullsi  18sbx 
february 2019 by csrollyson

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