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Health Online 2013 | Pew Research Center
Long in the tooth but useful; most findings have likely increased as online/digital adoption deepens
2013  healthcare  online  behavior  research  patient  customer  Experience 
4 days ago by csrollyson
The New Face of Audience Journey Mapping in Healthcare - Forum for Healthcare Strategists
POV espouses using "brand journalism" to reach consumers earlier in their decision journeys; cites 83% [all] customers access digital/web late in their journeys; 33% healthcare patients self-diagnose online
healthcare  marketing  customer  patient  experience  pointofview  journey  content  q3  2018 
4 days ago by csrollyson
Cancer Treatment's Worst Side Effects Can Be Financial : Shots - Health News : NPR
Good read about the burden that dealing with bills related to cancer care imposes on patients.
cancer  health  bills  insurance  patient 
27 days ago by brentfarwick
Page 17 – Patient Empowerment Network
Infographic not specific to cancer or CAR-T but useful background on how patients approach getting treatment
q1  2017  infographic  patient  sh1  social  media  research  sh2  ws1  18sbx  survey 
4 weeks ago by csrollyson
Great New Six Months post CAR-T – CLL Society
Doctor-patient talks about his CAR-T experience; Upenn "product" not yescarta nor kymriah
18sbx  sh1  ws3  bullsi  bullsi2  physician  patient  2018  cartcell 
4 weeks ago by csrollyson
The Role of the Oncology Nurse in CAR T-Cell Therapy
Issue and examples of nurses' roles in managing CAR-T side effects; some nice detail
ws3  atc  nurse  patient  education  cartcell  18sbx  side  effect 
6 weeks ago by csrollyson
Too Young For Cancer? | Everyday Health
A cancer physician and patient discuss how healthcare has neglected young adults in cancer research and treatment: they aren't young old people
millennial  cancer  social  stigma  treatment  fertility  interview  physician  patient  sh1  sh3  advocacy  young  adult  18sbx 
6 weeks ago by csrollyson
Oncology Nurse Inspires Patients, Health Care Team
Oncology nurse gets cancer, realizes she hasn't been empathic with her patients ("Now I get it")
oncology  nurse  empathy  patient  18sbx  story 
6 weeks ago by csrollyson
What Patients Say, What Doctors Hear. Doctor-patient Communication
Physician shares experiences and statistics of patient–physician communication
medicine  sh1  sh3  18sbx  communication  Statistics  example  social  memory  physician  patient  EMR  history 
6 weeks ago by csrollyson
The One Thing That Patients Need The Most – Ruth Henderson – Medium
Superb caregiver account with *both parents* one w NHL + eye-popping examples of care lapses
sh1  sh2  advocacy  18sbx  nhl  canada  example  story  dementia  family  bullsi  patient  caregiver 
6 weeks ago by csrollyson
FAQs — MY CANCER ADVOCATE
Another avenue for studying care hand-offs [continuity of care]
cancer  patient  sh1  sh2  advocate  faq  18sbx  ws2  ws3  handoff  COC 
6 weeks ago by csrollyson

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