patient-engagement   8

Is the genie out of the bottle? Digital platforms and the future of clinical trials: Economy and Society: Vol 0, No 0
Is it possible to conduct impartial clinical trials in a world full of digital networking tools that patients can use to coordinate themselves and act against research protocols? This paper builds on an ethnography of PatientsLikeMe, a company running an internet social media network where patients with different conditions share their clinical data with standardized questionnaires.
digital-health  patient-engagement  social-network  Patient-Like-Me 
january 2019 by PieroRivizzigno
Patient involvement toolkit for researchers | Cancer Research UK
Patient involvement can improve the quality and relevance of your work, helping you better understand and articulate the benefits your research can have for cancer patients. 

This toolkit provides guidance, tips and templates to help you plan, deliver and evaluate your patient involvement. Once you’ve planned how you want to involve patients, we can also help you find them. 
healthcare  patient-engagement  toolkit  UK 
november 2018 by PieroRivizzigno
Patient-Centered Vs. Lab-Centered 'Personalized Medicine' | HuffPost
“It is more important to know the patient who has the disease than the disease the patient has.” ―  Hippocrates

Personalized medicine was invented 2500 years ago when Hippocrates put the patient at the
center of medical care- not the gods or the practitioner or the treatment.

Dr. Capozzoli writes: “The once-glorious doctor/patient relationship is being cheapened into a commercial contract- like buying a car or filling out tax forms with an accountant. In my view, the tie between doctor and patient should be a powerful relationship of trust, empathy, and healing.
patient-engagement  patient-centered  Reference 
august 2017 by PieroRivizzigno

related tags

digital-health  doctor-vs-patient  healthcare  nejm  patient-centered  patient-like-me  patient-safety  reference  social-network  toolkit  uk 

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